Infantile Spasms

It's been a long day. It's been a long week. It's been a long month.
Liam had his appointment today with his Neurologist.
We were going to talk about Liams EEG test from last week.
His neurologist suspected that Liam was suffering from a rare case (as if everything he has dealt with wasn't rare enough) of epilepsy seen in infants that begin after 3 months of age.
Liam has what is called "Infantile Spasms" or West Syndrome.

These "seizures" are treated different than others.
Liam will be treated with a steroid.
We don't exactly know what the future holds for this little guy.
We won't know if the steroid will work for him as well as it may work for another child.
There are other kinds of medication, his Dr. just decided to go towards this one first.
We don't know what the long term damage will be until it (may) happens.
The good thing is that his condition is being treated because it was caught pretty early.
The only thing we do know is that Liam will have developmental impairment.

Liam will take longer than we thought he would to be able to do things.
That doesn't matter to us.
What matters is that the little guy is in no pain and happier than he already is.
We don't know how much this will damage him in any way.
All we can do for the little guy is make him as comfortable as we can.

He did not enjoy getting his vitals checked. I don't blame him.
Liam will be having another EEG test done in a couple of weeks and he will have a follow up appointment with his neurologist in about a month.
We are also trying to get a hold of his neurosurgeon.
Liam's head has grown once again and they don't know what the problem is.
He may be getting a CT Scan or MRI done soon.
Check back for more updates.

I should also mention he is trying to break 4 top teeth at once. Strong little man.